Serving Writer_Feminist_Nonprofiteer Daily, 6am-11pm
Paula and Drew
"I will live, and see, and do as much as I can as quickly as I can.
Which in the end may be a blessing you’ve bestowed. I just may do more
in my life because of you, MS... but I'll never thank you."
gave off the “got it all” vibe at first- young, attractive suburban
mother, activist and teacher, two polite and charming sons. But when I
showed up in the deep green of Michigan at 1am, I met a woman whose
orderly life is complicated by one of the most powerful and invisible
symptoms of MS- doubt. Paula is insightful about the rollercoaster
nature of this, juggling the effects of MS on her marriage, her kids,
her job and her sense of control. Although Paula channels the anxiety
and fear well, she’s scared. Of putting faith in medicine she has no
reason to trust, of knowing this road trip with her boys might be her
last. She is hurrying through life to get in as much as possible in
case the disease wins the battle- to Paula, MS is a ticking time bomb,
with no clear method for defusing. I spent a long, wonderful weekend
with barbeques, rainy days and people I now consider true friends. I
also got insight into the life of a woman with deep struggles- to retain
power over her body, her relationships and her future. Here, as Paula
and Drew sat quietly on a bench outside a Rockford ice cream parlor, I
found her as beautiful, tough and enduring as a Dorothea Lange mother.